Our mission is to provide grants to enable eligible children and young adults with Lyme disease to receive proper treatment and medication as well as raising awareness about Lyme disease.
LymeLight Foundation was started by two families who have children diagnosed with Lyme disease. Through their children’s struggle, both families discovered the incredible expense of battling Lyme disease and the inability of many families to afford proper treatment. Unfortunately, most treatment plans for Chronic Lyme are not covered by insurance. Existing Lyme foundations mainly focus on funding research and awareness. LymeLight Foundation is uniquely dedicated to funding medical treatment for individuals with Lyme.
The Foundation awards grants to eligible children and young adults through 25 years of age. It is the goal and the hope of the Foundation that through these grants children can receive proper treatment and medications in their fight against Lyme disease.
The LymeLight Foundation is recognized by both the IRS and State of California Franchise Tax Board as a tax-exempt 501 (c) 3 organization. Contributions to the LymeLight Foundation are tax-deductible as allowed by law.
Co-Founder and Chairman of the Board
Scott Bedford, Co-Founder of LymeLight Foundation, is currently serving as Chairman of the Board. He is the Founder and President of Peninsula Capital Management where he has spent 25+ years managing money for institutional clients, endowments and individuals. He is currently running his own family office. He has served on various for profit boards and nonprofit boards including Common Sense Management, The Fuller Foundation and the Saint Matthews Episcopal Day School.
Board of Directors Member
Scott Forsgren joined LymeLight Foundation in 2013 and serves on the Board of Directors. Affected by Lyme disease starting in 1997, Scott was not officially diagnosed until 2005. Having explored various options for recovering his health for over twenty years, Scott brings a unique perspective to the organization. He is a blogger, podcaster, health writer, advocate, facilitator and coach and is the editor and founder of a web site that focuses on his recovery and journey through Lyme disease. He frequently speaks at conferences and on a number of online events on the topic of Lyme disease and health optimization.
Program Manager and Board of Directors Member
Nora Thomas joined LymeLight Foundation in 2016 as a Program Manager and additionally began serving on the Board of Directors in 2018. After recovering from a debilitating 5-year battle with Lyme disease, Nora left her 20-year career in Information Technology, with companies including Intel, HP, and Apple, to leverage her experience toward a personally meaningful mission. Nora’s background has been instrumental in advancing the grants management program, fundraising and operations.
Co-Founder and Executive Director
Phyllis Bedford, Co-Founder of LymeLight Foundation, is currently serving as Executive Director. Previously she served as Development Director. Phyllis has spent the last decade in nonprofit work. She initiated and created a fundraising walkathon for Today’s Youth Matter, generating over $100,000 annually. Phyllis was a research analyst for McCullough Andrews and Capiello, on the portfolio management team at Rosenberg Capital Management and a financial analyst at Crocker National Bank.
Liz Rieke serves as Foundation Coordinator and has worked with LymeLight since it’s inception in 2011. Liz had a 27-year career with United Airlines, lastly in the position of Applications Development Manager/Consultant. Liz is a “champion” for LymeLight and brings her organizational and office skills to facilitate the varied aspects of event planning and day to day requirements. Liz’s expertise, creativity, and ongoing passion for LymeLight Foundation’s mission has been a valuable asset.
Megan Holm joined LymeLight Foundation in 2017 as Grants Coordinator. She previously volunteered and has been a supporter of LymeLight since its inception. Megan’s own Lyme battle began in 2000 and was debilitated for 9+ years. After regaining her health, Megan worked as an event planner, planning top events for Silicon Valley’s tech elite, venture capital moguls and Hollywood A-listers. Megan came to LymeLight seeking a career with more soul and a way to give back to the Lyme community. Megan uses her 18-year health journey to compassionately work with families through the grant application process. She also leverages her event experience to help fundraise for the Foundation.