Congenital Lyme Resources
Websites
LymeHope
A Canadian Lyme advocacy organization, LymeHope has taken a particular interest in the issue of mother-to-fetus Lyme transmission, supporting Lyme research and educational tools.
Children's Lyme Disease Network
An all-volunteer organization formed out of concern over the growing number of children becoming infected with Lyme disease and challenges families face getting a proper diagnosis and treatment.
Dr. Jones’ Kids
A resource guide created by the Dr. Charles Ray Jones. (Sadly, Dr. Jones passed on in May 2022, but his resources live on in his legacy.)
Articles
Navigating Pregnancy with Lyme Disease: A Guide to Pre and Post-Birth Care by Jennifer Sugden, ND & Yvonne Sorenson, PA-C
This article aims to help you navigate the crucial stages of pregnancy preparation, delivery, and postpartum care when dealing with Lyme disease.
NIH to intensify research on links between Lyme disease during pregnancy and adverse birth outcomes.
Congress Commends NIH Collaboration with Advocacy Groups to Advance Research on Maternal-Fetal Transmission of Lyme Disease
Dr. Ann Corson recommends treatment throughout pregnancy and breastfeeding.
Healthy Mom Best Prescription for Healthy Baby
An article by Dr. Charles Ray Jones
Study of 102 Live Births
A summary of key treatment recommendations during pregnancy
New guidance for the treatment of Lyme and other TBD in pregnancy
An article by blogger Christina Kovacs, Lady of Lyme
Pregnancy & Lyme Disease: All the Info about Gestational Lyme Disease
Public comment at the Tick-Borne Diseases & Associated Illnesses: National Community Engagement Initiative public meeting by Phyllis Bedford, Co-founder and Executive Director of LymeLight Foundation
Congenital Lyme disease is under-recognized by medical professionals
Videos
An Introduction to Families Facing Congenital Lyme Disease
Lyme Disease & Pregnancy:
State of the Science & Opportunities for Research
5th Annual LymeMIND Virtual Conference 2020
Mothers and Children Panel
4th Annual “Lyme Disease in the Era of Precision Medicine”:
Care Models for Mothers and Children
Podcasts
BetterHealthGuy.com
BetterHealthGuy.com Episode #46 Pregnancy in Lyme with Dr. Ann Corson
Living with Lyme
Living with Lyme: Lyme Disease and Pregnancy
with Sue Faber, RN
Inside Lyme
Inside Lyme: Babies Contracted Babesia
During Pregnancy
More Tools
The Treatment of TBD in the Pregnant and Pediatric Patient
For physician referrals for pregnant moms and young children with Lyme
reach out to kate@lymelightfoundation.org